The story within personal essays on genetics and identity
The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medicall...
| Otros Autores: | |
|---|---|
| Formato: | Libro |
| Idioma: | Inglés |
| Publicado: |
Baltimore :
The Johns Hopkins University Press
cop. 2013
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| Materias: | |
| Ver en Universidad de Navarra: | https://unika.unav.edu/discovery/fulldisplay?docid=alma991008577319708016&context=L&vid=34UNAV_INST:VU1&search_scope=34UNAV_TODO&tab=34UNAV_TODO&lang=es |
Tabla de Contenidos:
- pt. ONE Finding Out: Genetics and Ideas of Self
- 1. Undiagnosed / Kelly Cupo
- 2. Driving North / Charlie Pierce
- 3. Collateral Damage / Kate Preskenis
- 4. In Samarra / Amy Boesky
- 5. The Unnumbered / Alice Wexler
- pt. TWO Intervening: Living with Genetic Difference
- 6. Of Helices, HIPAA, Hairballs ... and Humans / Misha Angrist
- 7. The Power of Two: Two Sisters, Two Genes, and Two New Chances at Life / Isabel Stenzel Byrnes
- 8. Permission to Look: Documenting the BRCA Mutation / Joanna Rudnick
- 9."Why Would You Be Wantin' to Know?" Not Talking about Schizophrenia in Ireland / Patrick Tracey
- 10. Help Wanted / Michael Downing
- 11.Community and Other Ordinary Miracles / Mara Faulkner
- pt. THREE Passing Down: Genetics and Family
- 12. String Theory, or How One Family Listens through Deafness / Jennifer Rosner
- 13. What If / Laurie Strongin
- 14. The Long Arm / Clare Dunsford
- 15. Lettuce and Shoes / Christine Kehl O'Hagan
