Promoting the “Human” in Law, Policy, and Medicine Essays in Honour of Bartha Maria Knoppers
Professor Bartha Maria Knoppers stepped down from the Canada Research Chair in Law and Medicine at McGill University in April 2024, a post she held for more than 20 years. Professor Knoppers consistently prioritized “humanity” in her academic work and in policymaking. As such, she forged a strong in...
| Otros Autores: | , , |
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| Formato: | Libro electrónico |
| Idioma: | Inglés |
| Publicado: |
Leiden ; Boston :
Brill | Nijhoff
2025.
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| Edición: | 1st ed |
| Colección: | Global Health, Human Rights and Social Justice ;
1. Human Rights and Humanitarian Law E-Books Online, Collection 2025. |
| Materias: | |
| Ver en Biblioteca Universitat Ramon Llull: | https://discovery.url.edu/permalink/34CSUC_URL/1im36ta/alma991009869025206719 |
Tabla de Contenidos:
- Front Matter
- Introduction / Edward S. Dove , Vasiliki Rahimzadeh , and Michael J. S. Beauvais
- Chapter 1 DTC Pharmacogenetic Testing and Health Insurance: Good for Consumers, Good for Business? / Maxwell Brodie and Yann Joly
- Vignette 25 Years of Enriching Collaboration with Bartha M. Knoppers / Jacques Simard
- Vignette A Lifetime of Collaboration / Denise Avard
- Chapter 2 If We Build It, They Will Come: Population Biobanks and the Enduring Legacy of Bartha Maria Knoppers / Ma’n H. Zawati and Alycia Noë
- Vignette A Cameo on BMK / Claude Laberge
- Vignette Nice and Smart / Jennifer Stoddart
- Chapter 3 Anticipatory International Ethics / Ruth Chadwick
- Vignette Vivid Memories with Bartha Knoppers / Annelien Bredenoord
- Vignette A Tribute to Bartha Maria Knoppers: Dear Friend and Collaborator / Mark A. Rothstein
- Chapter 4 Policymaking as a Humanistic Endeavour: On the Art and Science of Genomics Policy Development / Eric M. Meslin and James V. Lavery
- Vignette Bartha Maria Knoppers: Accolades from the Antipodes / Dianne Nicol and Don Chalmers
- Vignette Overheard BMK / Timothy Caulfield
- Chapter 5 Bioethics “Laws”: Paradox or Way of the Future? / Emmanuelle Rial-Sebbag and Anne Cambon-Thomsen
- Vignette Bartha, Biobanking, and Success / Jane Kaye
- Vignette Thirty Years of Learning from Bartha / Pilar Nicolás
- Chapter 6 Bartha Maria Knoppers: A Standard-Bearer for Responsible Genomic and Health Data Sharing / Adrian Thorogood and Fruzsina Molnár-Gábor
- Vignette The Great BMK Effect / Patricia Kosseim
- Vignette Bartha Knoppers—Colleague and Friend / Martin Bobrow
- Chapter 7 The Sweet Smell of the Rose – Names, Categories, and the Authentic Meaning of Being Human / R. Alta Charo
- Vignette Trademark Bartha / Jeffrey Kahn
- Vignette The Magic Tin: Cookies, Policy, Ethics, and Mentorship / Rosario Isasi
- Chapter 8 Population-Based Genome-Wide Testing in Babies: Newborn Screening or Mission Creep? / Jan M. Friedman
- Vignette BMK’s Garden: Helping Us Bloom and Grow / Nadine Thorsen
- Vignette Bartha and Me / Rose-Marie Hozyan
- Chapter 9 A Human Rights Lens to Understanding the Concept of “Serious” Genetic Conditions / Erika Kleiderman and Vardit Ravitsky
- Vignette Bartha M. Knoppers: Why Family Matters / Trudo Lemmens
- Vignette The Light Shines Back on You: Protégés of Bartha M. Knoppers / Judy Illes
- Chapter 10 Defining Best Interests: Challenges and Perspectives in Paediatric Ethics / Pascal Borry
- Vignette Mentorship and Gratitude: A Thank You to Professor Knoppers / Dimitri Patrinos
- Vignette Shining Bright: A Journey of Illumination, Influence, and Inspiration / Amalia M. Issa
- Chapter 11 “Beyond the Moral Appeals of Bioethics:” International Human Rights Law as the Basis for the International Governance in the Biomedical Science / Andrea Boggio and Rumiana Yotova
- Vignette A Memorable and Enjoyable 20 Years / Kazuto Kato
- Vignette Bartha Maria Knoppers: A Fantastic Woman! / Michèle Stanton-Jean
- Chapter 12 Persons, Genomes, and Populations / Ron Zimmern
- Vignette Bartha, CGP , and the McGill Genome Centre / Mark Lathrop
- Vignette Bartha’s Presence / Ubaka Ogbogu
- Chapter 13 Human Diversity, Equity, and Bartha Maria Knoppers / Henry T. Greely
- Vignette Human Dignity at the Crossroads of Law and Science / Patrick A. Molinari
- Vignette A Tribute to Bartha / Graeme Laurie
- Chapter 14 Families through the Lens of Genomics: Obligation or Consideration? / Ellen Wright Clayton
- Vignette Bartha: An Exemplary Academic / David Townend
- Vignette Climbing Every Mountain: Bartha Maria’s Melody of Mentorship / Nicole Palmour
- Chapter 15 Whither Consent in Clinical Genetics? / Susan E. Wallace
- Vignette Bartha’s True Legacy / Jasper A. Bovenberg
- Vignette Thoughts about Bartha and Her Work / Eva Winkler
- Chapter 16 Securing the “Human” in the Generalization of Risk Stratification Algorithms through the Human Right to Science / Calvin Wai-Loon Ho
- Vignette Positivity and Perseverance / Alexander Bernier
- Vignette Bartha Maria Knoppers: A Game Changer / Alexandra Obadia
- Back Matter.
