Issues in returning individual results from genome research using population-based banked specimens, with a focus on the National Health and Nutrition Examination Survey : workshop summary

Issues in returning individual results from genome research using population-based banked specimens, with a focus on the National Health and Nutrition Examination Survey workshop summary

"Population surveys traditionally collect information from respondents about their circumstances, behaviors, attitudes, and other characteristics. In recent years, many surveys have been collecting not only questionnaire answers, but also biologic specimens such as blood samples, saliva, and bu...

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Detalles Bibliográficos
Autor principal: National Research Council (U.S.) (author)
Autores Corporativos: National Research Council (U.S.), author (author), Guidelines for Returning Individual Results From Genome Research Using Population-Based Banked Specimens (Workshop) author (issuing body), National Research Council (U.S.). Committee on National Statistics. issuing body (-), National Research Council (U.S.). Division of Behavioral and Social Sciences and Education. issuing body, Guidelines for Returning Individual Results From Genome Research Using Population-Based Banked Specimens (Workshop)
Otros Autores: Kinsella, Kevin, reporter (Repórter)
Formato: Libro electrónico
Idioma:Inglés
Publicado: Washington, District of Columbia : National Academies Press 2014.
Edición:1st ed
Materias:
Genomics > Research.
Genetic epidemiology > Laboratory manuals.
Genetics > Moral and ethical aspects.
Ver en Biblioteca Universitat Ramon Llull:https://discovery.url.edu/permalink/34CSUC_URL/1im36ta/alma991009820311606719
Tabla de Contenidos:
  • Genomics in Population-Based Data Collection: The Example of the National Health and Nutrition Examination Survey
  • Perspectives on Returning Genome-Based Research Results
  • Framing the Discussion
  • How Is NHANES Similar to/Different from Other Population-Based Studies?
  • Issues for NHANES
  • The Logistics of Returning Genomic Results from NHANES
  • Special Considerations for Reporting of Results in NHANES
  • Summary of Presentations and Discussion
  • Appendix A: Workshop Agenda
  • Appendix B: List of Registrants
  • Appendix C: Biographical Sketches of Steering Committee Members and Presenters
  • Committee on National Statistics.

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