Resource sharing in biomedical research

Detalles Bibliográficos
Autor principal: Institute of Medicine (U.S.).
Autor Corporativo: Institute of Medicine (U.S.). Committee on Resource Sharing in Biomedical Research (-)
Otros Autores: Berns, Kenneth I., 1938- (-), Bond, Enriqueta C., Manning, Frederick J.
Formato: Libro electrónico
Idioma:Inglés
Publicado: Washington, D.C. : National Academy Press 1996.
Edición:1st ed
Materias:
Ver en Biblioteca Universitat Ramon Llull:https://discovery.url.edu/permalink/34CSUC_URL/1im36ta/alma991009820304806719
Tabla de Contenidos:
  • Intro
  • Copyright
  • Preface
  • Contents
  • Executive Summary
  • CASE STUDIES
  • The American Type Culture Collection
  • The Multinational Coordinated Arabidopsis Thaliana Genome Research Project
  • The Jackson Laboratory
  • The Washington Regional Primate Research Center
  • The Macromolecular Crystallography Resource at the Cornell High-Energy Synchrotron Source
  • The Human Genome Center at Lawrence Livermore National Laboratory
  • CONCLUSIONS AND RECOMMENDATIONS
  • Features of Successful Resource Sharing
  • Strong Scientific Leadership in Agencies and the Research Community
  • Adequate Core Funding
  • Marketing and Advertising
  • Clear Guidelines about Ownership and Access
  • User Fees
  • Clear Policies for Retaining and Discarding Data and Material
  • Quality Control
  • Well-Defined Policies for Function of Research and Service at the Facility
  • Sophisticated Information Retrieval and Transfer Systems
  • Issues and Problems
  • One Uniform Policy on Resource Sharing is Not Possible
  • Incentives and Rewards for Resource Sharing are Not Fully Developed
  • Methods for Enforcing Existing Policies on Resource Sharing are Inadequate
  • There are Many Private and Public Stakeholders in Any Major Resource Sharing Attempt, Often with Conflicting Goals
  • Who Pays and What Do They Pay for?
  • Regulatory Requirements and Documentation Can Be Unnecessarily Complex and Burdensome
  • Education of Scientists Covers Neither the Ethos of Sharing Nor Intellectual and Tangible Property Issues
  • Resource Sharing Can Have National and International Implications
  • There is a Gap in Leadership
  • Partnerships in Resource Sharing May Be Unequal
  • Monopolies Can Be Good or Bad
  • RECOMMENDATIONS
  • 1 Introduction
  • COMPETITION FOR FUNDS
  • INCENTIVES FOR SCIENTISTS
  • NATIONALISM
  • METHODS AND GOALS OF THIS STUDY
  • A Member Survey
  • The Committee.
  • The Workshop
  • The Report and Its Recommendations
  • REFERENCES
  • 2 The American Type Culture Collection
  • GENERAL FACILITIES
  • PROGRAMS
  • Collection, Research, and Services Program
  • Professional Services Program
  • Education Services Program
  • Information Services Program
  • OWNERSHIP AND ACCESS ISSUES
  • COST ISSUES
  • OTHER ISSUES AND PROBLEMS
  • 3 The Multinational Coordinated Arabidopsis Thaliana Genome Research Project
  • PROJECT ELEMENTS
  • OWNERSHIP AND ACCESS ISSUES
  • COST ISSUES
  • OTHER ISSUES AND PROBLEMS
  • 4 The Jackson Laboratory
  • ANIMAL RESOURCE PROGRAMS
  • Production, Sale, Derivation, and Maintenance of Mice
  • Preservation
  • Derivation
  • Surgery
  • Bioinformatics
  • OWNERSHIP AND ACCESS ISSUES
  • COST ISSUES
  • OTHER ISSUES AND PROBLEMS
  • 5 The Washington Regional Primate Research Center
  • FACILITIES AND PROGRAMS
  • OWNERSHIP AND ACCESS ISSUES
  • COST ISSUES
  • OTHER ISSUES AND PROBLEMS
  • 6 The Macromolecular Crystallography Resource at the Cornell High-Energy Synchrotron Source
  • USER FACILITIES FOR PROTEIN CRYSTALLOGRAPHY AT SYNCHROTRONS
  • THE MACCHESS RESEARCH RESOURCE
  • Core Research Projects
  • Collaborative Research Projects
  • User Research Projects (Service)
  • Training and Dissemination
  • Workshops and Symposia
  • Training Videos
  • CHESS Newsletter
  • MacCHESS World Wide Web (WWW) Home Page
  • OWNERSHIP AND ACCESS ISSUES
  • COST ISSUES
  • OTHER ISSUES AND PROBLEMS
  • 7 The Human Genome Center: Lawrence Livermore National Laboratory
  • LAWRENCE LIVERMORE NATIONAL LABORATORY
  • HUMAN GENOME CENTER
  • Instrumentation and Technology
  • Information
  • Biological Materials
  • Chromosome 19-Specific Cosmids
  • Image Consortium cDNA Clones
  • OWNERSHIP AND ACCESS ISSUES
  • SUMMARY OF ISSUES AND PROBLEMS
  • 8 Conclusions and Recommendations
  • FEATURES OF SUCCESSFUL RESOURCE SHARING.
  • Strong Scientific Leadership in Agencies and the Research Community
  • Adequate Core Funding
  • Marketing and Advertising
  • Clear Guidelines about Ownership and Access
  • User Fees
  • Clear Policies for Retaining and Discarding Data and Material
  • Quality Control
  • Well-Defined Policies for Function of Research and Service at the Facility
  • Sophisticated Information Retrieval and Transfer Systems
  • ISSUES AND PROBLEMS
  • One Uniform Policy on Resource Sharing is Not Possible
  • Incentives and Rewards for Resource Sharing are Not Fully Developed
  • Sharing Requires Incentives, Not Disincentives
  • The Importance of Material and Data Assets Changes Over Time
  • Technologies and Needs are Evolving Very Rapidly
  • New Definitions of "Publication" May Have to Evolve to Keep Pace with the New Electronic Information Systems
  • Methods for Enforcing Existing Policies on Sharing are Inadequate
  • There are Many Private and Public Stakeholders in any Major Resource Sharing Attempt, Often With Conflicting Goals
  • Who Pays and What Do They Pay for?
  • Regulatory Requirements and Documentation Can Be Unnecessarily Complex and Burdensome
  • Education of Scientists Covers Neither the Ethos of Sharing Nor Intellectual and Tangible Property Issues
  • Resource Sharing Can Have National and International Implications
  • There is a Gap in Leadership
  • Partnerships in Sharing Resources May Be Unequal
  • Monopolies Can Be Good or Bad
  • RECOMMENDATIONS
  • Appendix A Workshop on Resource Sharing in Biomedical Research
  • Appendix B Acronyms.