Addressing sickle cell disease : a strategic plan and blueprint for action

Addressing sickle cell disease a strategic plan and blueprint for action

"Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Som...

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Detalles Bibliográficos
Autor principal: National Academies of Sciences, Engineering, and Medicine (author)
Autores Corporativos: National Academies of Sciences, Engineering, and Medicine, author (author), Health and Medicine Division, author, Board on Population Health and Public Health Practice, author, Committee on Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action, author
Otros Autores: Martinez, Rose-Marie, editor (editor), Osei-Anto, Henrietta Awo, editor, McCormick, Marie, editor
Formato: Libro electrónico
Idioma:Inglés
Publicado: Washington, District of Columbia : The National Academies Press [2020]
Materias:
Sickle cell anemia.
Medical Technology
Medicine
Diseases
Medical
Ver en Biblioteca Universitat Ramon Llull:https://discovery.url.edu/permalink/34CSUC_URL/1im36ta/alma991009816737306719
Tabla de Contenidos:
  • Introduction
  • Societal and structural contributors to disease impact
  • Screening, registries, and surveillance
  • Complications of sickle cell disease and current management approaches
  • Health care organization and use
  • Delivering high-quality sickle cell disease care with a prepared workforce
  • Developing and delivering the next generation of therapies
  • Community engagement and patient advocacy
  • Strategic plan and blueprint for sickle cell disease action
  • Appendixes.

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