Considerations for Returning Individual Genomic Results from Population-Based Surveys Proceedings of a Workshop
Population surveys collect information from participants by asking questions. Today, many surveys also collect biologic specimens that can be used to analyze a respondents DNA and other biomarkers. The National Health and Nutrition Examination Survey (NHANES) is a population survey that also adminis...
| Otros Autores: | |
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| Formato: | Libro electrónico |
| Idioma: | Inglés |
| Publicado: |
Washington, D.C. :
National Academies Press
2023.
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| Edición: | 1st ed |
| Materias: | |
| Ver en Biblioteca Universitat Ramon Llull: | https://discovery.url.edu/permalink/34CSUC_URL/1im36ta/alma991009816669406719 |
Tabla de Contenidos:
- Intro
- FrontMatter
- Reviewers
- Acknowledgments
- Contents
- Boxes, Figures, and Tables
- Acronyms and Abbreviations
- 1 Introduction
- 2 NHANES Current Structure and Opportunities for Adding Genomics (Session 1)
- 3 Return of Clinically Actionable Genetic Results (Session 2)
- 4 Regulatory Issues in the Return of Genetic Results (Session 3)
- 5 Process for the Return of Genetic Results (Session 4)
- 6 Informed Consent When Considering Returning Genetic Results to Survey Participants (Session 5)
- 7 Considerations in the Return of Genetic Results: Lessons from Other Research Studies (Session 6)
- 8 Key Themes and Considerations for Future National Health and Nutrition Examination Survey (NHANES)
- Appendix A: Public Meeting Agendas
- Appendix B: Committee and Speaker Biosketches
- Appendix C: Public-Facing Background Materials: Glossary of Terms and Acronyms
- Appendix D: Public-Facing Background Materials: Workshop Primer: Background and Context about the National Health and Nutrition Examination Survey (NHANES)
- Committee on National Statistics.
