Ethics and research with children a case-based approach

Presents and discusses challenging cases in the field of pediatric research ethics. The analysis presented in this work illuminates the challenges posed across a wide spectrum of both research protocols and stories of individual case-based approach. It provides an account of the enduring dilemmas th...

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Detalles Bibliográficos
Otros Autores: Kodish, Eric (-)
Formato: Libro electrónico
Idioma:Inglés
Publicado: Oxford ; New York : Oxford University Press 2005.
Edición:1st ed
Materias:
Ver en Biblioteca Universitat Ramon Llull:https://discovery.url.edu/permalink/34CSUC_URL/1im36ta/alma991009798030606719
Tabla de Contenidos:
  • Contents; Contributors; 1 Ethics and Research With Children: An Introduction; 2 Evaluating Benefits and Harms in Research on Healthy Children; 3 Optimizing Risks and Benefits: The Case of Rotavirus Vaccine; 4 Bioethics Meets the Barrio: Community-Based Research Involving Children; 5 Adolescent Research and Parental Permission; 6 Recruitment of Pregnant, Minor Adolescents and Minor Adolescents at Risk of Pregnancy into Longitudinal, Observational Research: The Case of the National Children's Study; 7 The Ethics of Newborn Screening Diabetes Research
  • 8 Payments for Participation of Children in Research9 Justice, Lead, and Environmental Research Involving Children; 10 Behavioral Research With Children: The Fenfluramine Challenge; 11 The Ethics of Predictive Genetic Testing in Prevention Trials Involving Adolescents; 12 Research Ethics and Maternal-Fetal Surgery; 13 Testing Drugs in Developing Countries: Pediatric Research Ethics in an International Context; 14 Research and Innovation in Pediatric Surgery: The Problem of Hypoplastic Left-Heart Syndrome; 15 Near the Boundary of Research: Roles, Responsibilities, and Resource Allocation
  • 16 Children and Placebos17 When Eligibility Criteria Clash With Personal Treatment Choice: A Dilemma of Clinical Research; 18 Involving Children With Life-Shortening Illnesses in Decisions About Participation in Clinical Research: A Proposal for Shuttle Diplomacy and Negotiation; Index; A; B; C; D; E; F; G; H; I; J; K; L; M; N; O; P; Q; R; S; T; U; V; W; Y; Z