Challenges and opportunities in using residual newborn screening samples for translational research workshop summary
"Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine is...
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| Otros Autores: | , |
| Formato: | Libro electrónico |
| Idioma: | Inglés |
| Publicado: |
Washington, D.C. :
National Academies Press
2010.
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| Edición: | 1st ed |
| Materias: | |
| Ver en Biblioteca Universitat Ramon Llull: | https://discovery.url.edu/permalink/34CSUC_URL/1im36ta/alma991009622300806719 |
Tabla de Contenidos:
- ""Front Matter""; ""Reviewers""; ""Acknowledgments""; ""Contents""; ""Abbreviations and Acronyms""; ""1 Introduction""; ""2 Newborn Screening as a Public Health Program""; ""3 Uses of Residual Newborn Screening Samples in Research""; ""4 Concerns About the Use of Residual Newborn Screening Samples""; ""5 Review and Consent in the Use of Residual Newborn Screening Samples""; ""6 Parental and Public Education""; ""7 Workshop Overview and Wrap-Up""; ""References""; ""Appendix A: Workshop Agenda""; ""Appendix B: Speaker Biographical Sketches""
